Autoimmune Diseases and the battle to live, don’t ignore the facts.

Transverse myelitis (TM), Lupus, Fibromyalgia, Scleroderma, Syrogen, Narcolepsy, Crohn’s Disease, Meniere’s Disease, Huntington’s disease, Creutzfeldt-Jakob Disease, HIV/AIDS, Multiple Sclerosis (MS), Rheumatoid Arthritis, Parkinson disease, Alzheimer disease, Huntington’s disease and other Autoimmune Diseases and Severe Mental Illness still lack funds to research genuinely and deeply about their causes, Holistic Medicine; conventional and alternative treatments and therapies ( acupuncture, chiropractic care, homeopathy, massage therapy, naturopathy, ect) and Alternative medicines (marijuana /cannabis)

Life has so many downs and ups..still those at their worst do their very best to inspire and be a change…that’s the case for Rhana Fleming!
Three years back when I was first diagnosed with Transverse Myelitis along with two other autoimmune disorders; Systemic lupus erythematosus (SLE) and  Hemolytic Anemia, unknown in the Mauritian medical vocabulary, Rhana has been a voice and an absolute strength to me and many more via her videos. On 24th August 2016, Rihanna lost her battle against Transverse Myelitis.

For many of us, like me who lives in countries where local supportive group
appropriate medical support and treatments related to our health conditions are non existent, foreign medical researches and exchange platforms are what keeps us alive.

Learn about autoimmune diseases, Donate for medical research and the least you can do is give some warmth and love to those in need.
I just wish that every wish for a cure of all, for all be heard and answered.

Don’t wait for it to be your turn and more life to be lost, to make change.Time can wait, not health.
Starts right HERE AND NOW.

Rhana’s story;

To really get to know Rhana Fleming, you have to watch her how-to gymnastics videos, where the Charlestown 12-year-old teacheed her YouTube audience how to master handstands and cartwheels.

But her world turned upside down when her parents got the call that day in December.

Roughly four hour hours after that, Rhana was at Hasbro Children’s Hospital, paralyzed from the neck down.

“We got a call from the gym that she was sick,” her father Robert Fleming said. “We didn’t really know how sick. We didn’t really think it was catastrophic sick.”

“I said was there an accident? Did she fall? And they said no, we were just doing warm-ups,” her mother Cheryl Fleming said.

It was a sudden, violent nerve reaction in Rhana’s spine that doctors call  *Transverse Myelitis. Rhana has been in the ICU for 25 days. Cameras are not allowed inside, but her father shows ABC6 cell phone videos of Rhana mouthing ‘I love you.’ The tube makes it tough for her talk, especially because she was still in excruciating pain.

Doctors see roughly 30 cases like Rhana’s in Rhode Island each year; however, 90% of them respond to what is called aggressive intervention. Rhana is part of the 10% that, so far, has not.

“We just don’t understand the process well enough to handle it,” Dr. David Mandelbaum, head of the Neurological Unit at Hasbro, said. “90% of the time we do, but with that 10%, there is just so much unknown.”

They did not know if Rhana was to walk again. They were trying to figure out whether or not any of this may be the result of her immune system over-reacting to an infection that had already passed.

But instead of harping on the unknown, Rhana’s parents have been pro-active, setting up a website to raise money for her care: http://www.rhanasjourney.com/
They were focused on their little girl’s spirit because even in the hospital bed, she has made them laugh out loud at her jokes and quietly cry at her selflessness. They realized that their little gymnastics teacher has a whole lot to teach them about life.

 

* Transverse myelitis is a neurological disorder caused by inflammation across both sides of one level, or segment, of the spinal cord. The term myelitis refers to inflammation of the spinal cord; transverse simply describes the position of the inflammation, that is, across the width of the spinal cord. Attacks of inflammation can damage or destroy myelin, the fatty insulating substance that covers nerve cell fibers. This damage causes nervous system scars that interrupt communications between the nerves in the spinal cord and the rest of the body.

Please help With Rhana’s Medical Bills
https://www.gofundme.com/rhana

 

 

You have endured what was unbearable with a smile always on…and I’ll carry that same smile until we meet again…Rest in peace fighter ❤Rhana Fleming!

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Bye bye Big Pharma, very HI LIFE. SLE Lupus, Transverse Myelitis, Hemolytic Anemia

I have absolutely no pleasure in the stimulants in which I sometimes was so madly indulge. In the desperate attempts to escape from all the insupportable of being chronically ill, many cost me strange impending doom.

In the recent pursuit life…I choose natural diets, cannabis and nature over them all.
Chronically ill patients have the right to:
Choose life over your prejudices,
Enjoy happiness over your sympathy
And Live life over your judgments…
Life and health matter the most to us!

Show support, understanding and compassion cause they have known and lived what it is to have a hell out of life..

Note: All testimonies about medical cannabis on my blog is my very own account.

Related links:
CANNABIS, MY SAVIOUR
CANNABIS; NOT JUST A SMOKING AND JOINT THING
This is my medical hisoty: MEDICAL INSTITUTIONS AND SERVICES, WHICH COST YOU YOUR LIFE
PATIENTS OR HAVE FAMILY, FRIENDS SUFFERING FROM CHRONIC&RARE DISEASES, CHECK THIS SURVEY.

CANNABIS, my saviour

I drink, eat, bake, smoke and massage IT…
Because it’s the only thing which boost my immune system during lupus SLE flare times, cures my partial paralysis due to transverse myelitis during flare times, gets my whole blood count to normal, doesn’t piss off my organs…
I’m addicted to IT, as for the past two years now i’m doing great off the 23 big pharma drugs (oral pills, IV drug administration and injections) , for the past 2 years i haven’t gone for blood transfusion as i used to (every 2 weeks in a month), spine, joint and muscular inflammation highly under control, for the past 2 years haven’t had to go for long hospitalisation…

Despite having to deal with two autoimmune disorders ( lupus SLE type and transverse myelitis ) where my immune system is in constant war with itself, cannot offer protection against banal and common infections and affecting gradually each and every of my organs, i feel, live and lead an almost normal life….

In short CANNABIS is my saviour…

If Methadone ( misused as recreational drug ) is the cure to drug addicts, Xanax ( addictive drug ) the cure for anxiety and panic disorders, Opioids including morphine ( narcotic pain medication derived from opium (illegal drug), resin of the opium poppy ) is the cure for acute pain and legal in the Mauritian medical practice… Why is cannabinoids ( found naturally in human metabolism, breast milk and cannabis ) still regarded as illegal in Mauritius and many other countries ?

Well, like it or not… I don’t need advice on this matter from a cigarette smoker, a social or heavy drinker, a big pharma lover and seriously no one coming from an empty barrel.

Stop the hypocrisy..if you don’t need it, I DO and so do some.
Stop being egoistic…if you don’t need a choice, I DO and so do some.

Like it or not…I’M A CANNABIS LOVER…
Booooooooooooom….

 

Patients or have family, friends suffering from chronic&rare diseases, check this survey.

After ten years of wrong diagnosis, with the help of a private doctor, I could finally put a name to what i have been suffering for real. Here is the links of the struggle of most who suffer from rare medical conditions;

https://anshikasawaram.wordpress.com/…/medical-institution…/

https://www.facebook.com/photo.php?fbid=10203690198246102&set=a.1503231591375.2064867.1551803088&type=3&theater

https://www.facebook.com/photo.php?fbid=10205680741448438&set=a.1503231591375.2064867.1551803088&type=3&theater

https://www.facebook.com/photo.php?fbid=10205905312062563&set=a.1503231591375.2064867.1551803088&type=3&theater

https://www.facebook.com/photo.php?fbid=10205996323577794&set=a.1503231591375.2064867.1551803088&type=3&theater

In this quest, I vowed to learn and research about Transverse myelitis and Systemic Lupus Erythematosus to better help those sailing the same ship as me.

After I publicly came out about my medical conditions,(https://www.facebook.com/photo.php?fbid=10203615819506680&set=a.1503231591375.2064867.1551803088&type=3&theater ), I am more often contacted by people who feel and live the same on facebook. Most of the times, I have benefited from lending an ear and a hand as this is how I achieve my goal, that of building an awareness community about invisible diseases

I am inviting and requesting Mauritians who are patients, have a family members, friends or acquaintances who suffer from chronic and rare diseases to please answer this survey on http://www.diseasemaps.org/en/. I will be so grateful and thankful , as this data will be of great help for coming projects.

You can choose to answer anonymously and get in touch with me via facebook, about anything related to the same issue.

Thank you and take care.